Saturday, 6 November 2010

Fertility Show - Part 2

That was getting a bit long...

The seminars cost £1 each, and I hadn't booked tickets for any of them. However, when I got there I discovered that they were not being held in rooms, but in roped-off areas. This meant that passers-by could stop and hear the seminars - the only extra you were getting for your £1 was the chance to sit down in a chair for 45 minutes. If I'd paid my £1, I might have been a bit miffed to realise that other people were getting to hear the seminars for nothing - especially when the barriers were lifted at the beginning of one talk and people without tickets were invited to fill the spare seats.

So I managed to catch the second half of a seminar on coping strategies before, during and after treatment, which had already started when I arrived. Then I lurked at the side of seminars on complementary and alternative medicine, fertility treatment for older women and one called 'Why should I give it another go?'. All were interesting, and it was good to learn more about reflexology in the seminar on complementary and alternative medicine, since I have my first refloxology session coming up on Monday.

In no particular order, here are a few of the little titbits that I noted down from these sessions.
  • There's plenty of suffering in life, and you will suffer at times - you don't need to practise for it by putting yourself through needless suffering.
  • We find it hard to live with uncertainty, so when things are uncertain, we try to make them certain. Often, we do this by predicting a negative outcome. We need to learn to live with uncertainty and allow ourselves to accept that positive and negative outcomes are both possible.
  • "Everyone is a house with four rooms, a physical, a mental, an emotional and a spiritual. Most of us tend to live in one room most of the time but unless we go into every room every day, even if only to keep it aired, we are not a complete person". (This is a quote from Rumer Godden, based on an Indian proverb.)
  • There was an acupuncturist there who said that the people who are successful following his treatment are the ones who feel a change in themselves and then make a change in the rest of their lives as a result - as opposed to those who keep coming for treatment week after week after week, but continue to do everything else exactly the same. He said if you're not willing to change, don't expect results.
  • In the talk on fertility treatment for older women, the guy talked about tests of ovarian reserve. He said it's a truism in medicine that where there are many alternatives, none is perfect - and this is the case with the various methods of testing ovarian reserve. So a poor result on one of the tests (FSH, AMH, antral follicle count) doesn't necessarily mean disaster.
  • He also said that a major issue has been identified with the quality of DHEA supplements. Some brands have been found to contain no DHEA at all, while others contain more than the stated amount. This gave me pause for thought, as I was thinking that if we still hadn't started IVF #4 by the time my prescription runs out, I would order some cheaper DHEA off the internet. I'll now look more carefully at the brand and do a bit more research before I buy it.
  • Of all creatures on the planet, humans have the worst reproductive potential. Up to 70% of all embryos are non-viable. Playing the numbers game now, I've had 5 embryos which were clearly not viable. Perhaps the 30% will turn up in my next batch.
  • Low AMH doesn't mean you're menopausal - having no periods for a year does. This reassured me, as my AMH is low, but my periods are still regular.

I'm still assimilating a lot of what I heard yesterday, but it was all useful, and I'm very glad I went.

Fertility Show - Part 1

I had wondered whether there was any point in going to the Fertility Show yesterday. Most of the seminars I was interested in were sold out, and I wasn't sure how much I would learn that was new, given how long we've already been on the IF train. Then on Thursday, my 4-year-old niece phoned and said she was going to be in a play at playgroup on Friday morning, and asked if I would go. Being incapable of saying no to a 4-year-old, of course I agreed.

So yesterday morning I did a bit of work on an article I'm writing which is due in on Monday, checked the material I'd been sent for another assignment which has just come in (yes, for the first time since August, I'm actually going to earn some money this month, and I'm quite relieved about it!), went and had coffee with a friend (a long-standing arrangement that I wanted to fit in, even though it had to be cut short because of the play), then rushed over to watch my niece's play. I did a bit of useful networking afterwards and picked up a couple of potential customers for the other bit of my new business (the bit I'm more excited about).

Finally, at about 1:30, I was ready to set off. The article wasn't finished, and we're busy all weekend, so I wondered if I should just go home and work.

But I remembered what my coach had said about priorities - if I want this IVF to work, it must be my number one priority, and I mustn't let other stuff get in the way. The Fertility Show is once a year, and you never know what useful titbits you might pick up at something like that. And I'll be able to make time over the weekend to finish my article.

I arrived at the show at about 2:45, and started by doing a quick tour of the hall to see what was there. I then had to go back out to the ticket office, having realised that there was way too much change in my pocket and they must have undercharged me. I think the woman was a bit surprised when I complained about having been given too much change and insisted on giving £10 back to her, but it felt good to do the right thing, and I like to think it made up for what happened with the seminars...

There were a few interesting stands about. Most of them had big bowls of various sorts of free chocolate and sweets in front of them, and I was very good and avoided taking any, despite the exorbitant prices in the cafe (£1.80 for half a litre of water, and I didn't even dare ask what the food cost).

One of the things I appreciated was the chance to browse through some books - our local bookshop isn't very big on infertility, IVF, etc, and with such a bewildering array of books out there, I didn't want to order from Amazon without getting a chance to flick through them first. I ended up buying the Foresight recipe book, which also contains a lot of advice and information about nutrition and menu planning, and Zita West's latest book.

A lot of clinics, both in the UK and overseas, were represented, including the other two that I considered when we were looking at switching clinics at the beginning of this year. One, which is known for its success with people with high FSH, didn't impress me much when I went to its stand towards the end of the day and all the representatives who had come from there stood chatting to each other and completely ignored me, but I took one of their brochures anyway.

The other is the place where a good friend of mine conceived her twins on her second IVF cycle. I had read that they did donor embryo treatment, and I got a chance to sit down and talk to their donation co-ordinator. She said they have three lots of embryos available for donation at the moment, but are not able to predict from month to month whether they will have any available. These three will be there until they are taken, which could be a couple of weeks or a few months. This is definitely something I'd like to explore with DH if IVF #4 doesn't work, and he showed some interest when I told him last night about the conversation.

I also met and chatted to the woman from Foresight, a couple of other nutritional experts and someone from Infertility Network UK.

I probably shouldn't have been, but I was surprised at the number of men who were there, especially as it was a normal working day and most would have had to take the day off work for it. I commented on this to DH, and he said, "Well, yes - we're involved too."

I explained that my surprise stemmed from the fact that the people I've met IRL and online who do all the research and are active in finding out how to improve their chances of success tend to be women, and he said, "That's just the natural way of things."

"It seems to be the natural way for us," I responded. And maybe he did finally realise that it doesn't have to be that way. I've left the Zita West book out on the coffee table and mentioned a couple of chapters that he might be interested in reading - you never know...

Friday, 5 November 2010

A timely exercise

Well, that exercise I did where I thought about my support network couldn't have come at a better time.

Yesterday, I was on the phone to my BFF and she asked what we were up to this weekend. I told her I was thinking of going to the Fertility Show.

She immediately began to giggle, and said, "Those are two words that really shouldn't go together, aren't they?"

It wasn't the most sensitive response ever, but then my effortlessly fertile friend still thinks that the way you get pregnant is by having sex. I suppose that image doesn't really go with the idea of a show - or at least, not the sort of show that people like us would be going to.

I'm sure a few weeks ago I would have got quite upset at the way she responded. Yesterday I was able to laugh it off - I love her dearly, she will always be my best friend, but there are some things she just doesn't get. And since I'm not relying on her for support in this particular area, that doesn't matter. I know who I can rely on, and they won't make mistakes like that. So we can just be good friends, without the pressure of me expecting her to understand something that she never can understand and constantly being disappointed when she doesn't live up to my unrealistic expectations.

(Incidentally, I told Jeannie, who IS in my support network, about this conversation, and she said she was worried now that she might say the wrong thing. Let me just say again, Jeannie - the reason you're such a major part of my support network is because you NEVER say the wrong thing. Even if it's ever not what I wanted to hear, it's the right thing because of where it comes from and the understanding and desire to give me emotional support that I know is behind it.)

Wednesday, 3 November 2010

Support network

The homework that my coach gave me this week was to think about who's in my support network - not just who my friends and family are, but who I can really rely on and turn to for help and support, both emotional and practical, in this whole business.

One of the ideas behind this is that if someone I have identified as not being in my support network disappoints me, or says the wrong thing, or upsets me in some way, the sting will be taken out of it somewhat by the realisation that they're not one of the people I'm relying on.

I've been thinking a LOT about this all week, identifying people in my mind and mulling over whether they're one of the four or five key people who will help me to get through this. And it's surprising how many people, regardless of how much I love them and know they love me, I've realised are not in this network.

One of the limitations for me in identifying people who can truly offer emotional support when I need it most is that there are very few people in the world that I'm prepared to cry in front of. And if I can't cry in front of someone, there's a point at which, when I'm at my lowest and most vulnerable, I have to stay away from them, or back off from the thing which is hurting me the most.

There are also those whose feelings I try to protect by not talking to them about how low I'm actually feeling, or how difficult I'm finding things. Or perhaps I worry that they'll think less of me if I admit to some of my uglier feelings.

A combination of those three factors means that my mother and sisters are not part of my support network. They know what's going on, they're very supportive, and I have told my mother some of what I've been feeling. My sister is wonderfully understanding about some things, and I know how much she wants this to happen for us. But there's always a big part of me that holds back, to protect them and to protect myself.

DH is going through this with me, and has the dubious honour of being someone I'm not afraid to cry in front of, or get impatient with, or show any other ugly and unpleasant feelings to. And he's patient and loving and tries hard to understand, but a lot of the time he's too close to the problem. And sometimes I get frustrated with the different way he chooses to deal with our situation.

I have a couple of friends who live locally and are always willing to offer practical support - the one who drove us to the clinic and picked us up when I was having my egg collection on IVF #1 and #2, the one who drops round with flowers and chocolates when I'm feeling low and offers to do my shopping for me when my back's bad. But although they'll ask how it's going when we're in the thick of treatment, neither of them wants to have children and they don't really understand how I feel.

And my BFF has demonstrated in the past that she's willing to drop everything and come to me whenever I need her. But she has three children and a lot of commitments, and I don't want to abuse that willingness by making her drop everything when she doesn't need to.

There are two or three close friends that I know I could call at any time to talk about things if I needed to. One went through IVF twice herself - the second attempt resulted in her now 9-year-old twins. Another had her own fertility struggles and really gets the sort of decisions I've had to make over the last couple of years. But I always hold something back - I don't want to cry, I don't want to upset them, I don't want to overburden them.

Most of all, I don't want to become that whiney friend who never talks about anything else and never moves on - I have personal experience of the compassion fatigue that can result when someone you've propped up through a difficult time in her life is still making the dramatic 2 am phone calls about the same issue several years later.

I met a couple of people through one of the internet forums - we were having treatment at the same place, and all three of us had failed IVFs around the same time. We propped each other up through it all, experienced it all together, and shared our impressions of the clinic, the buttoned-up consultant, the lovely nurses, the side-effects of the drugs and our hopes and fears for the future. One of them had her baby three weeks ago, after a successful third IVF treatment. The other is now about 18 weeks pregnant. They're not in the same place as me any more.

The last time I saw the latter of those two was when she told me she was pregnant. She sat there saying, "The thing is, I never gave up. I prayed really hard, and my DH and I have a really strong relationship. I think those two things are what made it happen." That made me feel as though if it didn't happen for me, it would be because I hadn't prayed enough, or because my relationship with DH wasn't good enough.

She also kept saying, "I know it's going to happen for you. I know you're going to get pregnant too."

And I kept thinking, "No, you don't. We can both hope as much as we like, but nobody knows."

I felt worse after seeing her than I did before, and although I'm sure we'll remain friends, she's certainly no longer on my list of people I could turn to for understanding.

So my support network, in the end, boils down to two 'people'.

One real-life person who I can talk to about anything, I can even cry in front of without feeling too uncomfortable, and who is always at the end of the phone when I need her. She sends me little notes and text messages that let me know she's thinking of me, and she's the only member of my family that I would ever want to read my blog. She gives practical advice as well as emotional support, and is a wonderful sounding-board. I just wish she didn't live quite so far away...

And the other 'person' is the blog itself, all the anonymous people who read it without leaving comments but who make me realise that there are people listening to my ramblings, and the wonderful people who leave comments to let me know they understand and send me virtual hugs when I most need them.

So I'd just like to say thank you for all your support - and let you know how important you all are to me.

Monday, 1 November 2010

Sticking at it

I'm feeling a bit run down at the moment - my insomnia has been pretty bad the last month or two, and I've got a nasty cold which is showing no signs of abating after a little over a week. So it's time to reassess what I'm doing and try to get myself (and DH) back into peak physical and emotional fitness ready for our final IVF attempt.

One of the things my coach pointed out in our last session is that I keep trying new things for a relatively short period of time and then abandoning them when they don't work straight away and moving on to the next miracle cure I've found on the internet. I need to give things time to work, and stop chopping and changing so much - it's not a wonder my body is a bit confused.

Well, I tried acupuncture for over six months, and eventually came to the conclusion that it had done me more harm than good, so I won't be going back to that.

The Foresight regime had a lot of positive benefits. DH stopped snoring, his sperm improved hugely, we both lost weight, and we both felt healthier, picked up fewer bugs and recovered more quickly when we did pick anything up. My FSH was lower for the months that we were on the regime, although I did have a corresponding rise in my oestradiol.

So why did we stop? Well, it's not so much that we consciously decided not to do it any more - it was a three month programme, following which we were supposed to get another hair analysis to see how we were doing. When we reached the end of all our supplements, we were a few days off the end of a cycle and although we did actually cut our hair and have it ready to send off, we decided to wait and see whether we were able to start in that next cycle - and sure enough, we were, and we got a much better embryo than on the previous two attempts (though I did only produce the one mature egg).

And then after our BFN, we never did send those hair samples off, and then they got too old and we would have had to cut new samples, and then DH got a really short haircut, and we just never got round to it. It takes a couple of weeks to send the hair off and get the results back and then order the supplements, and we just kept putting off deciding to do it.

My coach made a revolutionary suggestion last week. She said it was so long now since we stopped taking the supplements, we were likely to be back to square one, so why not just reorder the same supplements we took last time? Well, that had never occurred to me, but today I'll be searching out the order forms from last time and phoning up the supplier to see if I can do that.

We'll then stay on those supplements until the final IVF attempt has been and gone, however long that is.

I'm also going to stay on DHEA, and I've started taking wheatgrass again - I stopped after a month because I'd read that it could affect immune results, but I definitely felt healthier while I was taking it, so I decided to reorder it and we'll deal with the immune issue if and when it comes up.

During IVF #1 and #2, I listened to a self hypnosis CD. The woman's voice and some of the language that she used annoyed me from the start, but I persevered with it until we got our second BFN, and those CDs are now gathering dust in the spare room. I do like the idea of tapping into the mind-body connection and listening to something to help me relax, though, so I'm now using the Circle + Bloom series.

Coaching is currently helping me to identify and address the sources of stress in my life. Coaching is not meant to be an open-ended thing, as the idea is that it gives you the tools to deal with things yourself, but I am finding it very instructive and in each of the three sessions I've had so far, something has come up which has given me a new perspective and made me see something in a different way, so if there's work still to be done at the end of the 8-week course that I've already booked, I'll carry on with that for as long as necessary.

And the final piece in the jigsaw at the moment is that I finally got hold of the reflexologist who had been recommended to me (it turns out she was on holiday last week), and I have my first appointment with her next week.

So there we have it - a whole raft of extra measures which will hopefully help me to get ready for our final attempt at IVF. And once they're all in place, I'm going to stick at it until those pesky FSH and E2 levels are under control and we get to go ahead on our final IVF attempt.

Friday, 29 October 2010

Messy emotion

One of my very clear memories from childhood is of a time when we moved house. Nothing unusual in that - we moved house regularly due to my father's job, and by the age of 10 I was attending my sixth school.

On this particular move, when I started at my new school I felt that I had a clean slate, and was anxious to keep it that way. Conscious that I was growing up and had responsibilities, I was especially keen that none of my new friends should ever see me cry.

It must have been about three weeks into my time at the new school that I went to get something from under a raised counter top, stood up too early and bashed my head very hard against the corner of the counter. It really really hurt, and instantly tears came into my eyes.

The reason this incident stuck in my memory is that I can still remember how hard I cried, and how miserable I felt for days afterwards. Not because of the pain in my head, but out of frustration, humiliation and sheer rage at myself for having exhibited such a sign of weakness in front of everyone.

This happened shortly after my sixth birthday.

I soon became adept at keeping myself under control, and by the time I went to boarding school at the age of 10, I found it difficult to cry even if I wanted to.

I've spent many years since then keeping my emotions well buttoned up. If something was too painful to talk about without getting visibly upset, then I would avoid talking about it. If it was too painful even to think about without crying, I would push it to the back of the mind and do my best to avoid thinking about it. I've cried more in the last year than I have in the whole of my adult life, and there's a big part of me that despises the weak, blubbering mess that infertility is turning me into.

What's happening in my coaching sessions is the exact opposite of my usual way of dealing with difficult things. I tell my coach about something that has happened, and she asks me questions about how I dealt with it and how it made me feel, and she keeps asking questions beyond the point where I would back off from the subject as being too uncomfortable to deal with. So in two of the three sessions I've had with her, I've cried. And I still hate doing it in front of other people, but these are issues which need to be dealt with, so I sit there displaying all that embarrassing, uncomfortable, ugly emotion and work with her to try to work out how I can make things better.

But I do sometimes wonder with what sort of disgust my six-year-old self would have viewed the incontinently emoting adult I seem to have become.

Tuesday, 26 October 2010

Benched again

I wasn't really enormously keen on getting started this month. There were several reasons for this - the cycles that I've had since IVF #3 have been so short that I just didn't feel ready, having mentally prepared myself to wait three months. The DHEA and vitamins that we were given after the last follow-up are meant to be taken for at least three months, and it hasn't been three months yet. I'm concerned that my cycle doesn't seem to have fully returned to normal since our last IVF. And I feel rotten this week because I've got a bad cold - yesterday I completely lost my voice, and had the greatest difficulty making myself understood when I rang the clinic.

Because of that last point, I was even more hesitant about phoning the clinic and getting my blood test done. I thought it wouldn't be fair on everyone there to take my coughing and spluttering into the clinic and spread my germs around. I even asked about this over the phone, and the person I spoke to told me not to worry about it, and that having a cold wouldn't affect the treatment if my levels were right.

Anyway, despite all my reservations, I went in and had the blood test. My levels were:

FSH - 13.4
LH - 5.4
Oestradiol - 146
Prolactin - 188

These numbers are almost exactly the same as when I was first tested at the other clinic last summer, following which I got half a dozen eggs and two embryos transferred in IVF #1, so they're certainly not disastrous. The FSH is, however, the highest I've had - despite one month of wheatgrass (I didn't order any more after the first month, because I read that it could affect the immune readings) and almost three months of DHEA.

The nurse who called with the numbers asked if I'd been very stressed lately, since she said this can have a negative effect on FSH. I instantly said no, because I feel as though I shouldn't be stressed now that my job, the main cause of stress in the past, is gone.

But of course, life isn't just about work, and I have had other stresses in my life recently - not least the worry about how I'm going to earn money in the future. And one sign that I probably have been more stressed than I was admitting to is that I've been sleeping badly again for the last couple of months - having some trouble getting to sleep in the first place, then waking up at about 3 and being awake for at least an hour, and sometimes for the rest of the night.

I'm pleased that my numbers aren't any worse, and it's kind of reassuring to know what's going on at the moment, but I'm also quite pleased not to have been starting with the IVF this month, when I just didn't feel ready.

So the next 25 days or so will be spent trying to get myself ready. There are three particular things I'm doing to address the stress - the coaching, following Circle + Bloom's Mind + Body programme, and today I'm going to call a reflexologist who's been recommended to me. She specialises in fertility issues, and I've read that this can help some people - since acupuncture did nothing for me, I'm going to see if this will work better.

I'm also going to get another month's supply of wheatgrass, increase my B vitamin intake, and really concentrate on cooking good, nutrient-rich meals over the next few weeks.

DH and I discussed going back on the Foresight programme. But by the time you've had the hair analysis done, got the report back, ordered the recommended supplements and received them, a good couple of weeks have passed, so DH suggested that we wait until next month, and then if my FSH is high again on the next test, we'll do the hair analysis. Last time round, we had to wait five months for my FSH and oestradiol levels to be good enough to start treatment, so we're half prepared for it to be a while this time as well - but hoping that November will be our month.

DH, by the way, has been very supportive this week, and is really trying to take more responsibility. I have also been stepping back and letting him make more of our joint decisions - things like "this letter came from the water company today - I've left it out so you can have a look at it and see whether you think we need the insurance they're offering", rather than making my own decision and binning the letter like I usually do, and also really asking his opinion on whether I should have the blood test and what we should do next, rather than (as I now see that I usually do) telling him what I think we should do and then asking if he agrees.

I'm not bothered that my FSH is a bit too high for this month, but I really really really want to get it down so that I can get started next month - so now the destressing begins...

Monday, 25 October 2010

Positive negativity

I keep talking about acknowledging the negative in my life, and yet what I'm really trying to achieve is a positive attitude towards our upcoming IVF. It seems a bit contradictory, but this is my reasoning.

As we've gone through failure after failure in the last two and a half years - first failing to conceive naturally, then eventually being told IVF was our only hope, then going through three failed IVF treatments - I've been trying harder and harder to protect myself against the pain of yet another failure.

I'd pretty much reached the stage where I was thinking that it's inevitable that the next IVF will fail, and that it doesn't matter if it does, because my life is pretty perfect as it is.

And yet I know that this isn't the case - it will matter tremendously to me if this IVF fails, and although my life is good, and could be good even if we never have children, I'm kidding myself if I think that I'm happy to move on and live a child-free life.

So my attempt to protect myself from having negative feelings is actually contributing to my negative attitude towards IVF, where I'm already convinced that it's going to fail before I even start. And because of that, I'm terrified to start, because until I do, I still have some hope. But after the inevitable failure, there will be no more hope that I'm ever going to have my own biological child.

I think I need to allow myself to acknowledge the extent to which my life at the moment is not what I want it to be, in order to start visualising again the sort of life I do want and imagining that it's possible to have that. The friend I stayed with last weekend said that she's convinced I will be a mother, but she's not sure how that will come about - whether I'll give birth to my own child, give birth to a donor embryo or adopt a child. She said the only way I'm not going to get there in the end is if I decide myself to stop trying.

I don't think she's entirely right - all our fertility treatments could fail, we could get turned down for adoption, and we genuinely could end up running out of options. But it's certainly a refreshing change from all those people who say, "I just know you're going to get pregnant soon" - to which my immediate mental response is, "No you don't - and why can't we just acknowledge that some people never are going to get pregnant and I could be one of them?"

But the basic idea about not giving up hope of us becoming parents one day is a good one. And in particular, I need to go into this IVF with the hope that it's going to succeed. If I'm protecting myself from negative emotions by convincing myself that it's going to fail before I even start, I'm not allowing it the best chance possible to succeed.

I think that's what I mean by acknowledging the negative. I'm not going to turn into a total Eeyore. I'm not going to lose my generally upbeat attitude to life. I just want to acknowledge to myself how much I want this to work and allow myself to feel hope without being crippled by the fear that raising my hopes will only make me fall harder when those hopes are dashed.

And by writing all this, I think I've just convinced myself that, this being CD1 (and I'm very bothered by the fact that I just had my second 24-day cycle in a row and that my cycle doesn't seem to have sorted itself out properly since IVF #3), I will feel the fear and call the clinic today, rather than giving up on this month before it even starts and putting it all off until next month - or the month after - or the month after that.

Saturday, 23 October 2010

The bright side

I don't think I'm a natural optimist - but since the days when I was a moody teenager, I've worked very hard at accentuating the positive. I've been pretty successful, and I still think of my petrol tank as 'only one sixteenth full' rather than 'nearly empty'. Fortunately, that's never actually led me to run out of fuel...

But does accentuating the positive sometimes mean denying the negative altogether, or denying my feelings about it, until it gets too much for me and I explode? Or does the suppression of the negative increase the stress in my life, because I secretly know it's there but am trying to pretend to myself that it's not?

My last two posts have basically been whinges about my DH's behaviour. (Incidentally, I really appreciated all your comments. I actually mentioned to him this morning that the three huge glasses of wine hadn't really sat very well with his assumption of responsibility, and he said, "But she only half-filled the glass each time, so it wasn't really three glasses." I pointed out that the glasses were the size of small buckets, and he seemed genuinely surprised and claimed not to have noticed that they were larger than your average wine glass!)

In my first coaching session, I filled in a thing called the Circle of Life, in which I scored various areas of my life out of 10 according to how they were going at the moment. The scores I gave were almost all between 7 and 9, and I gave my relationship with DH 9/10.

In the second session, the coach asked if I wanted to revisit any of the scores in the light of the week's events, and I didn't really - except that I increased the score for my career, because although it's at a bit of an impasse at the moment, I'm not too unhappy about it.

She suggested that I was kidding myself - basically indicating that my life was pretty close to perfect and especially giving our relationship such a high score when I was clearly very angry at DH at that particular time.

I keep coming back to this thought and wondering if I should be less contented with my life at the moment. I know that over the last few months I've begun to focus more on all the things in my life that I enjoy and that would be more difficult or at least very different if we had children. And that's me - I'd rather look at what I do have than what I don't. And I'd rather feel happy than dwell on the things that make me unhappy.

The trouble is that the things that make me unhappy are still there, lurking beneath the surface. And every so often something happens to make me realise how present they still are, and how much they do still bother me.

I know that in order to get what I really want, I need to examine all those things that I've shoved to the back of my mind and stop pretending to myself that the status quo is absolutely fine. And I know that this is the process I went through with the coach I saw before, who helped me to take the plunge and make some big changes in my life.

The difference is that this time, the end result of all this is not within my power. It's not as simple as "if I don't get that job, another one will come up soon and I just need to tweak my CV a bit and brush up on my interview technique" or "if I look long enough and hard enough, I'll eventually find the perfect house in the right area".

With IF, I can do everything 'right', remind myself exactly how much I want to be a mother, throw a harsh light on all the areas of my life that are not perfect right now, but nothing I can do will guarantee me a baby at the end of it. I might end up stirring up all the areas of discontent, bringing my unhappiness to the fore and then being left with nothing but discontent and unhappiness at the end of it all.

And that's why I'm terrified of admitting, even to myself, that any area of my life is much less than perfect at the moment. But I think it's also something I really need to allow myself to do. (Mind you, I'm still not ready to suggest that my relationship with DH is any less than 90% perfect - it's just that I've been bringing the 10% to the fore recently...)

In retrospect, I wonder if the title of this post should have been 'The dark side'...

Friday, 22 October 2010

Responsibility

At my coaching session yesterday, we talked about what happened on Tuesday. This morphed into a long discussion of DH's passivity, my frustration with it, and what I might be able to do to make things better.

Once again, I was surprised by something that really made me stop and think, and that I think I really needed to hear. My coach asked if DH had always been this way, and I said he had. She then suggested that if I had always known he was like this, and was now trying to change him, perhaps the problem was mine rather than his. He's been totally consistent, and perhaps it's unreasonable for me to expect him to change.

On the other hand, he does need to take responsibility, and we have fallen into a pattern where I make all the decisions and he just passively sits back and lets me. I have the feeling that if I don't do things, they just won't get done, and so I rush around doing everything and then get stressed because he's not helping.

She helped me to see that I need to step back a bit and actually allow him to take responsibility himself, rather than automatically doing everything myself. If I don't do things, they may end up being done differently, but the world probably won't fall apart around my shoulders.

And it's true - I find it as hard to let go of my independence and of doing everything myself in the way I like it done as he does to take control of anything. So the problem is not all on his side, and I need to work on my control freakery as much as he needs to work on his passivity.

I told him all about it when he got home from work yesterday evening. Then I told him another thing we had discussed - that he has the responsibility for making sure that his 50% of the DNA that's going to our future embryo is as healthy as possible. I can't do that for him, and so he needs to agree to take on that responsibility himself and make the right choices without me nagging reminding him the whole time. And he agreed that this is what he needs to do.

And then we went to our monthly book club meeting, and as I watched him accept his third glass of wine I gritted my teeth and wondered how long I can keep letting him take the responsibility if the decisions he makes are often so irresponsible.

Wednesday, 20 October 2010

Imbalance

DH and I had a Big Talk last night.

It all started with him working late and failing to turn up to Niece #2's birthday tea. We were all expecting him, and the nieces kept asking when he was going to arrive. He claims he had mentioned in the morning that he would be working late. If so, I certainly didn't hear him, and in any case, since he knew we had plans for the evening, I feel that he should have at least acknowledged that he was going to be changing the plans rather than just casually remark that he might be late. The birthday tea had been discussed several times over the last week, and he said nothing to suggest he wouldn't be there when I reminded him of it by e-mail during the day.

Anyway, eventually I got worried that he was so late, and texted him to ask where he was - and was pretty cross when he replied that he was still at work. He did join me at my sister's house eventually, but not until after the children were in bed.

Somehow, the discussion that we had on the way home returned to a familiar theme - one that you'd think had been done to death, except that nothing ever changes.

DH is easy-going to the point of laziness and complete passivity. He's always very good at agreeing with me that X or Y needs to be done, and he's usually good at emotional support once a decision has been made. Even then, though, I find that if the decision involves something I need to do, he'll support me. If the decision involves something he needs to do, it almost invariably ends up not getting done, regardless of my support/reminders/nagging.

But the day-to-day running of our life - decisions both big and small about everything from whether it's worth trying for another IVF treatment or whether we should try to adopt, right down to what we eat every day and even what clothes he should buy - all those decisions are left to me. If I ask his opinion about anything, he always says, "You decide." And on the rare occasions when he does make a decision of his own, they're often bad ones - like unerringly choosing the unhealthiest option on the menu when we go out for a meal.

And I'm tired of bearing the entire responsibility for everything that goes on in our life. I'm tired of the fact that he doesn't support me in the decision-making, and that if the decision involves him, he'll listen and nod along, not disagree, but then go away and do the complete opposite of what we've agreed. If he disagrees, he should say so, but I'm fed up with this form of passive aggression.

And guess what - most of the 'conversation' yesterday consisted of me talking, followed by long pauses as I waited for a response. Occasionally, he would say, "Yes, you're right" or "That's true", but he never engaged in trying to work out anything positive.

Anyone who thinks they would like a husband who never disagrees with them should take careful note - it's the most exhausting and frustrating thing in the world. I dream of the day that he gives me a reasoned response that shows he has actually thought about something we're discussing and has come to a different conclusion. I want to be his wife, not his bloody mother.

Monday, 18 October 2010

First coaching session

Wow, it's almost a week since I last posted. I've been busy since then, and we went away for the weekend, but apart from that I've been doing a lot of processing - which will probably make this an incredibly long and boring post. If you don't have time to read it, the short version is "I saw a fertility coach for the first time and I think that was a good idea and will be helpful, so I've booked a series of sessions with her".

On Thursday I had my first session with the fertility coach. I had been fondly imagining that I had formed some sort of protective shell around my feelings about infertility - and maybe even that I had come to terms with it to the extent that I'd really be OK if it turned out that this was it and we were never going to have children.

I did realise, though, that I felt very ambivalent about this next cycle, and that I had some very confused feelings that I needed to try to sort out, which was why I went to see her in the first place.

Anyway, the whole "I'm strong and together and really OK with all this" idea very quickly fell apart. I even cried after I spoke to her on the phone to set the appointment up, and for the hour that I was with her on Thursday I cried for most of the time. This is kind of a big deal for me - I hate all that messy emotion, find crying in front of people very uncomfortable and have never understood those people who say, "Have a good cry and you'll feel better". So I was surprised that I cried in front of a complete stranger for an hour and then actually felt sort of calm and relieved while I was wandering around the shops afterwards.

But it's not all about wallowing in my misery and having a good cry. I've seen a coach before in my life - a few years ago I was very unhappy at work, and my boss actually arranged for me to see a life coach. This coach helped me to see that there were positive things I could do to improve my situation, and helped me to find the courage to stop procrastinating and change the things in my life that I wasn't happy with. Within a few months, I had started a new and much more fulfilling job, moved from a grotty South London flat to a lovely house in a beautiful area outside London, and met my future husband. (The only thing I found a bit odd was that I saw her at my new place of work about four months after our last session and said hello - and she barely even acknowledged me. I felt that if that had been me, I would at least have been interested to see that my former client had obviously followed my advice to the extent that she now had a new job, and would have wanted to spend two minutes finding out how she was getting on, out of curiosity if nothing else, rather than giving the impression (even though I know this was the case in any event) that I had only ever shown an interest in her because I was being paid to do so.)

Anyway, there were three main things that came out of Thursday's session with this new coach (apart from the whole messy but cathartic blubbing business).

The first is that I was using a lot of negative language. For instance, I said that our next cycle is likely to fail because I'm a poor responder. She said that I should try to avoid putting negative labels on myself like that, as if it's somehow my fault that I haven't responded well to the drugs in the past and as if it's a foregone conclusion that this will always be the case. She wants me to work on expressing things in a less negative way.

The second thing is that we talked about all the other stuff that's going on in my life at the moment, and how IVF #3 was squeezed into a very busy period and I did my jabs in a different place every day while I rushed from one thing to the next. She looked at me as if I was mad and said that while keeping everything ticking over might be a good thing when you're going through your first ever treatment and have plenty more chances, this next IVF is my last shot. If I'm serious about wanting to make it work, I need to give it the best possible chance, and that means prioritising it above everything else and not trying to set up a new business, dropping everything to babysit for other people every five minutes, and arranging to have a ridiculously active social life while I'm cycling. And if that means saying no to people, then I just need to learn to say no.

I talked about this with DH afterwards, and fairly tentatively said that I felt I'd been given permission to take my foot off the accelerator for a while and stop trying to keep all my balls in the air. He instantly replied that he'd been trying to get this through to me for a few weeks - and he certainly has talked about the IVF being our number one priority for the coming months, above any need for me to start earning money. Somehow, I needed to hear that from someone completely impartial before I could actually accept it.

The third thing was something that took me totally by surprise. The coach asked me what I saw as my purpose or role in life. I said that I had met DH quite late in life, and that I had often thought it was useful that I was single and childless, because I had been able to be there to help various people who needed it. This had continued since our marriage, and I sometimes felt that I wasn't meant to have children, because I was the one who was meant to be always available to be there for other people. I didn't say this, but a couple of times I've thought that it's just as well our IVF #1 and #2 didn't work, as my sister needed a lot of help around the time that Niece #4 was born this year, and not being heavily pregnant or having a new baby myself meant that I was able to give that help.

And then I started to cry really hard and said I didn't want to be that person any more, and it was my turn to have it for myself rather than always have to be just the one that's there for other people.

So this idea that I'm not meant to be a mother is one of the things that I need to confront and get past, and it kind of surprised me, because although that feeling has been lurking there in the background for a long time, I've never really thought of it in terms of something that might be giving me a mental block which could be preventing me from getting what I want. And maybe if I can accept that I have as much right to be a mother as anyone else, then my body can start to do its stuff and make itself a bit more of a hospitable environment for a baby to snuggle in next time round.

Interestingly, this weekend we stayed with one of my very dear friends, and we stayed up and talked for ages after the children and husbands were in bed (one of the advantages of visiting a fellow insomniac!). I told her all about this session, and she said that the reason she turned to me when her first baby was born was that she knew I knew what I was doing and would be able to give practical support. Then she said, "And far from thinking you're not meant to be a mother, when I look at everything you've done for various people over the years, all of that is the reason why I think you absolutely MUST be a mother, because you'll be so fabulous at it."

I'm not so sure about fabulous, but it's certainly a different way of looking at this.

Hoping is still scary, because I'm afraid that if I allow myself to hope too much, I'll just have further to fall when the (inevitable?) disappointment comes along. But if I don't have any hope, there's no point in doing any of this. I've definitely proved to myself that I still want this as much as ever, and I still feel as rotten as ever about it not happening. So I'm slowly working on building up hope again, and trying to believe that it really is my turn now. And I just really really hope that this hope isn't going to be crushed again.

Tuesday, 12 October 2010

Planning...

When Mr Wonderful said that we must have two full cycles and then we could start again on the third cycle, I fixed in my head that we would be starting to try again (with those pesky FSH tests) in late November. Then, of course, I had a 21-day cycle and a 25-day cycle, and suddenly I'm staring into the barrel of the starting gun again.

Mr Wonderful said that for the best results, I should take DHEA and DH should take the high dose Vitamin C and E for three months. When AF shows up at the end of this month, it won't have been anything like three months yet.

So I'm not sure if I'm physically or mentally ready for another cycle to start in a couple of weeks' time. But then I wonder if it's just fear holding me back - the fear of failing again and of what will happen next, since this will be our final attempt. And I think of how my biological clock is winding itself down and is barely ticking any more, and I wonder if a delay of even one month might harm our (very slim) chances of success.

And then there's work. I'm hoping that the groundwork I'm putting in at the moment will lead to work starting to come in fairly soon, and it's possible that if I put this off until late November, I may once again have to juggle a treatment cycle around work commitments. That may even be true if we get to go ahead this month, but if it is, I'm still likely to have more work on next month.

Of course, the decision could well be taken out of my hands. I could go for my blood test this month and find that my FSH and E2 levels aren't good enough to start. But even if they are, I just don't know whether it would be better to wait a month longer (actually, only about 26 days longer) and get the extra benefit of taking DHEA for a bit longer.

The timing of the last cycle was not ideal for me - I was in my last couple of weeks of work, and I had teaching and other commitments which meant increased stress, lots of time spent on my feet, and lots of shooting up in various public toilets. I felt quite ambivalent about going ahead with it, but was concerned that with my dodgy hormone levels I might not get another chance.

With this next attempt being our last, I really don't want to have any sort of ambivalence about its timing - but I can't see the future, and I don't know when my hormones are going to behave themselves (if they ever do) or when work will start to come in (if it ever does).

For a control freak like me, it's so hard to have to make these decisions while only ever being in possession of a maximum of half of the relevant information.

Monday, 11 October 2010

I was right

Thank you for your advice and encouragement on my last post. I did e-mail my friend, and it turned out I was right - although obviously I'd rather have been wrong.

She responded very quickly and told me about the devastation she and her husband had suffered when they lost a very much-wanted child quite late in the pregnancy. She also told me that her son was conceived through IVF.

I'm so sorry for the pain she's had to go through, but really glad that I made that contact - it's so easy to do nothing in these circumstances, but with your help it took me less than a minute to compose an e-mail which has opened up a line of communication and hopefully made her feel that someone else cares about what happened to her.

Saturday, 9 October 2010

Hmmmm

I have a friend who I don't see much of these days. We worked together about 15 years ago, and went on a few holidays together. We went to each other's weddings, and every so often we meet up in a big group with other former colleagues. She has one child, a boy born after she'd been married about five years, and I've always known that she absolutely doted on him. We actually speak to each other probably less than once a year, but we are friends on Facebook.

Her Facebook status today took me slightly by surprise - it announces that Baby Loss Awareness Week starts today.

I don't really know what to do with this. I'm not aware that she's ever lost a baby, but it would certainly explain why her son is quite so precious to her and why he's an only child. And as far as I know, she knows nothing about our IF struggles - unless another mutual friend has mentioned it to her.

I want to acknowledge her status in some way, but I'm not too sure how. Two people have 'liked' it, and it would be very easy just to press that button and forget about it. But I think I'm going to send her an e-mail, and I'm not sure yet what it's going to say. If you post a status update like that, you're bringing something out into the open and it deserves some sort of response.

But how do you find the right words to respond to someone when you're not entirely sure what it is you're responding to?

Friday, 8 October 2010

Dealing with it

I know it doesn't seem that way, because this blog has always been my emotional outlet, but I've been struggling to express my feelings, or even sometimes to know what my feelings are, over the last IVF failure and preparing for the next (and last) one. The huge emotional outburst when our first cycle was delayed by a month, and then when it failed, has never been repeated. Is that because I don't care as much? Or because that level of emotion just can't be sustained and I'm getting used to the pain that IF causes me? Am I denying my feelings to myself, or am I just not feeling them as much?

I had been thinking it was the latter - that with the passage of time, I've come to accept what's happening, accept that I may never be a mother, and get used to that idea so that it's not the huge disaster that I once thought it was.

But the way I've reacted to some things lately - like my friend announcing her pregnancy on Wednesday, and the way I felt when AF showed up on the plane last week, makes me think that the feelings are all still there, but I've buried them and not dealt with them. If you knew me in real life, you'd see that 99% of the time, I just get on with things, enjoy life and actually talk about other stuff. When I cry, I generally cry alone (and then tell all of you about it) - I don't like to show that sort of vulnerability to people, and I also don't like to upset people who are close to me by showing that I'm upset.

I need some help in understanding how I feel and in working out some of my negativity and feelings of hopelessness, so that I can approach this last cycle in a positive frame of mind. I do believe that your state of mind affects your body, and I want to give myself the best possible chance. So after about six weeks of toying with the idea of contacting a fertility coach, and after six weeks of looking at her website and putting off actually doing anything positive, I finally made the phone call yesterday.

I won't go into detail about what we said, but I felt that this was someone who could really help me to work out some of my negativity and move forward, so I've booked a session with her for next Thursday. I told DH about the conversation last night, and he was totally supportive of the idea, though I don't think he wants to join in.

I feel like I'm still in this big dip - I certainly haven't started to dig myself out yet - but perhaps I have just got myself a spade.

Thursday, 7 October 2010

"Pick me, pick me"

Do you remember PE lessons at school, when the sadistic games teacher would choose the two most popular people in the class and get them to pick teams for that day's game? And of course, they would pick the star athletes first, then their best friends, and eventually all that would be left would be the ones with two left feet that nobody wanted. And of course again, the ones with two left feet would never be chosen by the sadistic games teacher to pick the teams.

I used to be one of those two-left-footers, and the team picking always used to end up in one of two ways. Either one of the team captains would eventually sigh and realise that, with only me left, she would have to accept me on her team, or there would be too many people in the class for that particular game and so two or three of us would end up never being picked, and would spend the rest of the games lesson running round the perimeter of the hockey pitch, or being tasked to run up and down the sides of the netball court, ready to retrieve the ball if it ever went out of play.

The feelings of inadequacy and exclusion that I felt in those days, as I held my breath, waiting to find out whether I would be able to join in the game at all and desperately trying to pretend that I didn't care if I ended up on the sidelines yet again, are replicated and magnified in my current journey.

Yesterday I met a friend for coffee. I met her through an IF internet forum, and our shared experience has helped to ensure that we formed a strong and deep friendship from the beginning. She is the same age as me, has similarly crappy eggs, a husband with similarly crappy sperm, and is a similarly poor responder to the IVF drugs. Like me, she has had three failed IVF cycles.

With all this in common, I should have been nothing but delighted when she texted me just as I was about to leave home. She said she had some rather wonderful news to tell me, but would quite understand if I decided I couldn't face it and changed my mind about meeting her for coffee.

It took me half an hour to drive to the place we'd agreed to meet, and my feelings on the way over there surprised me. I didn't want to see her, I didn't want to hear her good news, and as I got closer, I felt more and more miserable and sorry for myself.

When she arrived, she asked how my job situation was, as the last time I saw her was just before I finished work. I shook my head, said, "No job, no baby, no future" and had the greatest difficulty in not bursting into tears on the spot. And that's odd, because when I'm not feeling daunted at the magnitude of the task in front of me, I'm actually quite excited about my new portfolio career.

It's hard to explain how you can be genuinely happy for a person's good news and yet at the same time feel as though that good news is breaking your heart. In the great PE lesson of life, she just got picked and is bouncing happily towards the game, while I'm left wondering whether there's going to be room for me in the team, or whether I'm going to be left running up and down the sidelines looking on for ever.

Tuesday, 5 October 2010

The bank manager can wait

One of my warmest memories is from when I was working in China. My mother came out to visit me, and my father wasn't able to join her. My first nephew had just been born, and I was desperate to meet him. So my mother and I cooked up a plan that I would come home to England for a couple of weeks that summer. We told my brother and SIL (parents of my nephew), but didn't tell anyone else in the family - including my father.

The evening I arrived, my brother and SIL picked me up from the airport and drove me to my parents' house. My father was told they were coming with an extra guest, and my mother asked him to lay the table for supper. He grumbled and complained, saying how ridiculous it was that they were coming mid-week in an evening when my brother had to work the next day and they had a small baby. When we arrived, I got out of the car, and his face was a picture.

Later in the week, we surprised my sisters at school. Their reaction was almost as good, but it's my father's that I really remember.

Today is my father's birthday. Of course, I'm not travelling halfway across the world to surprise him this time. But I am just about to set off to drive 200 miles. I've phoned and wished him a happy birthday and made sure he's at home today - his favourite film is on the telly at lunchtime, and he said he's planning to watch that. Fortunately, he also has it on DVD, so if I disturb his viewing, it won't be too much of a disappointment.

So the quest for work can wait another day - I spent yesterday ordering the books I need and then buying a new computer to use for work, so with all this expenditure the income had better start coming in soon. But for today, my bank manager will just have to contain himself - I'm off to wish my dad a happy birthday.

Sunday, 3 October 2010

Out of sorts

I'm feeling a little bit overwhelmed at the moment. On the job front, I'm wondering if I've overestimated my abilities and might be better off just looking for the sort of ordinary, dull job that I've been so strongly resisting. I spent yesterday doing some research on the internet and convincing myself that I've been completely deluded about my level of ability and that there's no way anyone will give me money for what I do.

On the baby front, I'm simultaneously looking forward to the opportunity to try again at the IVF and dreading it, because once it's over, that's it and there are no more chances. At the moment, I just can't see it succeeding, and part of me is thinking that we should just accept that and not waste another huge chunk of money on it, especially at a time when I don't have a job. Another part of me panics and feels weepy even at the thought of not having another go.

I've been given the details of a fertility coach who lives nearby, and tomorrow I'm going to give her a call. I've reached a stage where I desperately need to talk this through with someone completely objective who can help me to make sense of the way I'm feeling.

Saturday, 2 October 2010

Back home

Well, we had a marvellous holiday. It was wonderful to see my brother, to spend hours chatting over coffee with my SIL (thanks, Jeannie), to get to know my nephews again and have lots of playing and lots of snuggles with them, to see where they're living now and be able, now that we're home, to picture their daily life so much better.

They're living in a little settler town in the Eastern Cape which is packed with history, as you can see from the beautiful store fronts here.


There's a beautiful cathedral in the centre of town...

... the university, where my brother works...

... and nearby, there's a huge pineapple farm...


... and a game park with several different types of animals and birds, including loads of elephants.

We really didn't want to come back... and guess which witchy old aunt joined us on the flight home, as if to say, "Don't ever expect things to happen just because you're relaxed, buster."